Speech-language pathologist intervention of communication in the relief of suffering in palliative care: an integrative review

Authors

DOI:

https://doi.org/10.20453/rhr.v7i1.5408

Keywords:

speech-language pathologist intervention, communication, palliative care, terminally ill patient

Abstract

Objective: To analyze the state of scientific knowledge in relation to the Speechlanguage pathologist intervention of communication in the relief of suffering of the terminally ill patient in palliative care. Materials and methods: The research was conducted under the methodology of an integrative review of the literature, descriptive and retrospective in scope, focused on the parameters established by Whittemore. Results: Phonoaudiological intervention strategies were proposed for adults and pediatric patients, which were focused on interpersonal communication, being intervened from the categories of communication to adjust to change, meeting needs, simplifying, giving and receiving gratitude, regret and end-of-life support. The multidisciplinary work was cross-sectional to alleviate the suffering of the terminally ill patient in palliative care. Conclusions: The difficulty of integrating interventions in languages other than English, Spanish, French and Portuguese was a limitation; however, the objective was achieved.

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Author Biography

José José Ariza De La Barrera, Universidad Antonio Nariño. Bogotá, Colombia.

Magíster en Cuidados Paliativos.

References

International Association for Hospice and Palliative Care. Palliative care definition [Internet]. IAHPC; 2019, 18 de febrero. Disponible en: https://hospicecare.com/what-we-do/projects/consensusbased-definition-of-palliative-care/definition/

Organización Mundial de la Salud. Cuidados paliativos [Internet]. OMS; 2020, 20 de agosto. Disponible en: https://www.who.int/es/newsroom/fact-sheets/detail/palliative-care

Organización Mundial de la Salud. Cáncer [Internet]. OMS; 2022, 3 de febrero. Disponible en: https://www.who.int/es/news-room/fact-sheets/detail/cancer

Organización Panamericana de la Salud. Prevención, control y eliminación de enfermedades transmisibles [Internet]. OPS; [s. f.]. Disponible en: https://www.paho.org/es/enfermedadestransmisibles-determinantes-ambientales-salud

Von Gunten CF. Interventions to manage symptoms at the end of life. J Palliat Med [Internet]. 2005; 8(Suppl 1): S88-S94. Disponible en: https://doi.org/10.1089/jpm.2005.8.s-88

Gomes AM. El cuidador y el enfermo en el final de la vida - familia y/o persona significativa. Enf Global [Internet]. 2010; 9(1): 18. Disponible en: https://revistas.um.es/eglobal/article/view/93841

Twycross R. Medicina paliativa: Filosofía y consideraciones éticas. Acta Bio [Internet]. 2000; 6(1): 28-46. Disponible en: http://dx.doi.org/10.4067/S1726-569X2000000100003

Ellershaw J, Ward C. Care of the dying patient: The last hours or days of life. Commentary: a “good death” is possible in the NHS. BMJ [Internet]. 2003; 326(7379): 30-34. Disponible en: https://doi.org/10.1136/bmj.326.7379.30

Goldberg S. There’s an elephant in the room: Issues in death and dying [Internet]. Stan Goldberg Writer; 2007. Disponible en: https://stangoldbergwriter.com/theres-an-elephant-in-the-roomissues-indeath-and-dying/

Tobar-Fredes R, Olivares-Matus CA, Tapia-Saavedra S. Fonoaudiología en cuidados paliativos para adultos y adultos mayores: fundamentos, roles, abordajes y desafíos. Rev Chil Fonoaudiol [Internet]. 2021; 20: 1-16. Disponible en: https://doi.org/10.5354/0719-4692.2021.58486

Kelly K, Cumming S, Corry A, Gilsenan K, Tamone C, Vella K, et al. The role of speech-language pathologists in palliative care: Where are we now? A review of the literature. Prog Palliat Care [Internet]. 2016; 24(6): 315-323. Disponible: https://doi.org/10.1080/09699260.2016.1141745

Whittemore R. Combining evidence in nursing research: Methods and implications. Nurs Res [Internet]. 2005; 54(1): 56-62. Disponible en: https://doi.org/10.1097/00006199-200501000-00008

Whittemore R, Knafl K. The integrative review: Updated methodology. J Adv Nurs [Internet]. 2005; 52(5): 546-553. Disponible en: https://doi.org/10.1111/j.1365-2648.2005.03621.x

De Souza MT, Da Silva MD, De Carvalho R. Integrative review: what is it? How to do it? Einstein [Internet]. 2010; 8(1): 102-106. Disponible en: https://doi.org/10.1590/s1679-45082010rw1134

Pérez LL. Condiciones de salud y trabajo de los profesionales de enfermería en América del Sur (revisión integrativa) [tesis de maestría en Internet]. Bogotá: Universidad Nacional de Colombia; 2017. Disponible en: https://repositorio.unal.edu.co/handle/unal/62362

Hopia H, Latvala E, Liimatainen L. Reviewing the methodology of an integrative review. Scand J Caring Sci [Internet]. 2016; 30(4): 662-669. Disponible en: https://doi.org/10.1111/scs.12327

Manterola C, Asenjo-Lobos C, Otzen T. Jerarquización de la evidencia: Niveles de evidencia y grados de recomendación de uso actual. Rev Chil Infectol [Internet]. 2014; 31(6): 705-718. Disponible en: http://dx.doi.org/10.4067/S0716-10182014000600011

Singh H, Haghayegh AT, Shah R, Cheung L, Wijekoon S, Reel K, et al. A qualitative exploration of allied health providers’ perspectives on cultural humility in palliative and end-of-life care. BMC Palliat Care [Internet]. 2023; 22: 92. Disponible en: https://doi.org/10.1186/s12904-023-01214-4

Roe JW, Leslie P. Beginning of the end? Ending the therapeutic relationship in palliative care. Int J Speech Lang Pathol [Internet]. 2010; 12(4): 304-308. Disponible en: https://doi.org/10.3109/17549507.2010.485330

Silva CL, Bertoncelo C, Barros AP, Padovani M. Caracterização dos recursos de comunicação utilizados por pacientes em cuidados paliativos - revisão integrativa. Revista CEFAC [Internet]. 2017; 19(6): 879-888. Disponible en: https://www.scielo.br/j/rcefac/a/WjpgfNSvYsmpJ8vVLCcp/?format=pdf&lang=pt

Moreira MJ, Guimarães MF, Lopes L, Moreti F. Contribuições da fonoaudiologia nos cuidados paliativos e no fim da vida. CoDAS [Internet]. 2020; 32(4): e20190202. Disponible en: https://doi.org/10.1590/2317-1782/20202019202

Antunes AP, Centurion DS, Ferreira LP. Cuidados paliativos na fonoaudiologia: revisão integrativa. Rev Kairós [Internet]. 2019; 22(4): 417-427. Disponible en: https://revistas.pucsp.br/index.php/kairos/article/view/50148

Barriguinha CI, Mourão MT, Martins JC. Dificuldades de comunicação e deglutição em doentes em cuidados paliativos: visão dos doentes e familiares e/ou cuidadores informáis. Audiol Commun Res [Internet]. 2017; 22: e1655. Disponible en: https://doi.org/10.1590/2317-6431-2015-1655

Aguirre-Bravo AN, Sampallo-Pedroza R. Fonoaudiología en los cuidados paliativos. Rev Fac Med [Internet]. 2015; 63(2): 289-300. Disponible en: http://dx.doi.org/10.15446/revfacmed.v63n2.48539

Nagdee N, De Andrade VM. ‘I don’t really know where I stand because I don’t know if I took something away from her’: Moral injury in South African speech–language therapists and audiologists due to patient death and dying. Int J Lang Commun Disord [Internet]. 2023; 58(1): 28-38. Disponible en: https://doi.org/10.1111/1460-6984.12765

Mendes BN, Christmann MK, Schmidt JB, De Abreu ES. Percepção de fonoaudiólogos sobre a atuação na área de cuidados paliativos em um hospital público de Santa Catarina. Audiol Commun Res [Internet]. 2022; 27: e2565. Disponible en: https://doi.org/10.1590/2317-6431R-2021-2565

Krikheli L, Carey LB, Erickson S, Carey-Sargeant CL, Mathisen BA. Recommendations for speechlanguage pathologists in paediatric palliative care teams (ReSP3CT): An international modified Delphi study. Int J Speech Lang Pathol [Internet]. 2021; 23(5): 486-496. Disponible en: https://doi.org/10.1080/17549507.2020.1866073

Krikheli L, Mathisen BA, Carey LB. Speechlanguage pathology in paediatric palliative care: A scoping review of role and practice. Int J Speech Lang Pathol [Internet]. 2018; 20(5): 541-553. Disponible en: https://doi.org/10.1080/17549507.2017.1337225

Chahda L, Carey LB, Mathisen BA, Threats T. Speech-language pathologists and adult palliative care in Australia. Int J Speech Lang Pathol [Internet]. 2021; 23(1): 57-69. Disponible en: https://doi.org/10.1080/17549507.2020.1730966

Chahda L, Mathisen BA, Carey LB. The role of speech-language pathologists in adult palliative care. Int J Speech Lang Pathol [Internet]. 2017; 19(1): 58-68. Disponible en: https://doi.org/10.1080/17549507.2016.1241301

Collins CA. ‘There’s this big fear around palliative care because it’s connected to death and dying’: a qualitative exploration of the perspectives of undergraduate students on the role of the speech and language therapist in palliative care. Palliat Med [Internet]. 2022; 36(1): 171-180. Disponible en: https://doi.org/10.1177/02692163211050818

Jacinto-Scudeiro LA, Ayres A, Olchik MR. Tomada de decisão: papel do fonoaudiólogo em cuidados paliativos. Distúrbios Comun [Internet]. 2019; 31(1): 141-146. Disponible en: https://doi.org/10.23925/2176-2724.2019v31i1p141-146

Holland AL, Nelson RL. Counseling in communication disorders: a wellness perspective. 3.a ed. San Diego: Plural Publishing; 2018.

Emmons RA, McCullough ME. The psychology of gratitude. New York: Oxford University Press; 2004.

Kapleau P. The Zen of Living and Dying: A Practical and Spiritual Guide [Internet]. Colorado: Shambhala; 1998. Disponible en: https://terebess.hu/zen/mesterek/Zen-of-living-and-dying.pdf

Travis LE, Wood KS. Handbook of speech pathology. New York: Appleton-Century-Crofts; 1957.

Bernal SG, Pereira OL, Rodríguez GE. Comunicación humana interpersonal. Una mirada sistémica [Internet]. Bogotá: Corporación Universitaria Iberoamericana; 2018. Disponible en: https://repositorio.ibero.edu.co/handle/001/596

Mathisen B, Carey LB, Carey-Sargeant CL, Webb G, Millar CJ, Krikheli L. Religion, spirituality and speech-language pathology: A viewpoint for ensuring patient-centred holistic care. J Relig Health [Internet]. 2015; 54(6): 2309-2323. Disponible en: https://doi.org/10.1007/s10943-015-0001-1

Published

2024-06-30

How to Cite

Ariza De La Barrera, J. J. (2024). Speech-language pathologist intervention of communication in the relief of suffering in palliative care: an integrative review. Revista Herediana De Rehabilitación, 7(1), 16–34. https://doi.org/10.20453/rhr.v7i1.5408

Issue

Section

REVIEW ARTICLE